ROP Disease

Project Nanhi Aankhe

Key Focus Areas of Project

Education + Awareness

We believe key to saving vision lies in raising awareness about the disease and importance of timely screening. Educative material is designed in simple language and focus on Disease, Risk factors, Importance of screening and timely treatment.

ROP Screening

Our screening program is based on 3 A’s – Acceptable, Accessible, Affordable And Follows 4 T’s Principle Targeted, Training, Telemedicine Tracking

KMC Promotion Campaign

WHY ROP

We can save 80% of Preterm babies from blindness.
Early stage when Rx is effective has no symp+ typically start 2-3 week after birth.
Serious lack of awareness + screening
Non Uniform distribution of resources.
On disability scale blindness rank highest.
Cost of disease unattended is huge.
We contribute to a life family, spciety.
We contribution to our nation (Bharat)

Leading Yet largely Preventable cause of blindness Each Preterm is at risk of ROP Disease and needs ROP Screening. India is the Preterm Capital of the World. 20% of world PTR in India Year 2022

Number of ROP Blind

Babies/yr adding to Existing pool and rising

In 2010 – 2000 babies cases registered
In 2023 – 5000 babies cases registered
In Future 18000 babies cases will affected
{As Paucity of Population-based data for ROP actual no. could be very high}
80% among above are blind Due to Unawareness+ non-screening south Indian study showed increament in the number of babies with advanced disease.

Baby: We can save

8 out of 10 babies from blindness.

Changing Trends

Inc. Preterm birth
Dec. IMR
Inc. Survival of Micro prime
Inc. IVF + Life style D Leading to Inc. Preterm Rising Population.

IMPACT ON

Mental, physical, social, economic wellbeing of baby+ family
National Economic burden

Loss on income 170,624 INR
Inc. in National Blind Health expense

LACK OF ROP

Lack of Specialist across nation

800 NICU and only 30% have screening facility
Majority of ROP Blind children received NICU care.

Awareness

Awareness on various channels

Newspaper
Radio
TV
Social Media
Posters Inside NICU
Stickers on Dischargepaper
Closed group Awareness
Asha Workers Training
Nursing staff Training

How we do Screening

A Technician trained in ROP Screening of new born babies travel to different NICU located in Rural/ Urban/ Semi Urban areas weekly based on fixed timetable. ROP screening is done using a special fundus camera designed for new born babies ( Portable, Digital Wide field fundus camera, NeoForus). Images of the babies retina are taken by technician. Babies needing ROP screening are selected based on National Guidelines by Govt. of India. These images are then reported according to International Classification ICROP-3 by trained ROP Specialist and Treatment is advised accordingly. This is exactly the same approach which is done while we go for X-ray / CT Scan/ MRI. This approach is pioneered by KIDROP Program of Varayana Nethralaya Bengaluru, which is approved by GOI and CDC Guidelines.

Our Technician is Trained at HVDEH Pune , A national Centre for ROP Training.

Milestone    2020   * Foundation Registered * Camera Purchased
2022       Training of Doctor
2023    * Training of Technician * Program Staned in 2 District * 500 babies screened * 1000 screening sessions * 50 eyes saved
2024    * Website developed * Training (of Asha Workers) * Stickers (on Discharge card) * Posters (outside NICU)

Core Strength of our Project “नन्ही आंखें”

We meet the 4 cardinal Principles of screening by WHO
We follow National Guidelines
We do Evidence based follow up and advise treatment accordingly
Committed trained staff
Engagement and Education of parents
We promote KMC at each visit
Model based on KIDROP program
Our Approach is safe, Patient centered, timely, effective and efficient
We are dedicated, determined and putting Consistent effort for the cause.
We continuously thrive for improving the program quality.

ROP screening

Our approach

Our Mission

Our mission is to make sure all young people and children get all the support they need, when they need it, no matter what it is.

Whether it is a reassuring conversation, financial help, education, professional training, or simply the assurance that they are not alone, we will make sure that everyone gets support that meets them where they’re at as quickly as possible.

Our Vision

We want to build a world where no child or youth feels alone and gets every possible help they need as soon as possible.

Our entire team wants to see a world where every youngster struggling in any way feels able to reach out and has people who’ll help them with education, jobs, and more. We want to spread out in every region so we’ll be reachable to all.